Article: Tech-savvy dad launches open-source platform to save children with rare diseases – including his son

Cures, Open Health
Sanath Kumar Ramesh with his son, Raghav

Tech-savvy dad launches open-source platform to save children with rare diseases – including his son

This special series focuses on important community issues, innovative solutions to societal challenges, and people and non-profit groups making an impact through technology. On a beautiful August day in a Bellevue park, just as he was getting ready to cut the cake for his little boy’s first birthday, Sanath Kumar Ramesh got a call from his son’s doctor.

At last he knew what was making his child sick, what was preventing Raghav from being able to eat on his own, raise his head or hold a toy. It was a mutation at a single spot in his genetic code.

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Article: Linux Foundation hosts RareCamp open-source platform to democratize gene therapy

Cures, Open Health, Procedures (Medical)

Linux Foundation hosts RareCamp open-source platform to democratize gene therapy

The OpenTreatments Foundation said today that its open-source RareCamp software will be hosted by the Linux Foundation, as part of its effort to make that platform available to anyone to kickstart the creation of new gene therapies for rare genetic diseases.

The idea with the RareCamp software is to decentralize drug development by putting the ability to create new treatments directly into the hands of parents and others whose loved ones might be affected by extremely rare genetic diseases.

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