Article: Open Source Joins Efforts to Create Gene Therapies for Rare Diseases

Cures, Drugs, Open Health, Procedures (Medical)

Open Source Joins Efforts to Create Gene Therapies for Rare Diseases

Some 400 million patients worldwide are affected by more than 7,000 rare diseases; yet treatments for rare genetic diseases remain an underserved area. More than 95 percent of rare diseases do not have an approved treatment, and new treatments are estimated to cost more than $1 billion.

Sanath Ramesh created the RareCamp project and the OpenTreatments Foundation to enable patients to create gene therapies for rare genetic diseases and then work with their doctors and nonprofit organizations to develop drugs. The Linux Foundation, the nonprofit organization enabling mass innovation through open source, is helping those efforts succeed.

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Article: A new collaboration demonstrates how tech can help understand rare diseases

Cures, Open Health

A new collaboration demonstrates how tech can help understand rare diseases

The Linux Foundation’s open source software will be used to develop gene therapies for rare genetic diseases in the newly announced RareCamp project. Gene therapies for rare genetic diseases is the goal of the newly founded RareCamp software project from the collaboration of The Linux Foundation and the OpenTreatments Foundation.

There are 400 million patients worldwide affected by more than 7,000 rare diseases, yet treatments for rare genetic diseases are an underserved area. More than 95% of rare diseases do not have an approved treatment, and new treatments are estimated to cost more than $1 billion.

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