Article: Huma and RARE-X partner to accelerate research for 9,500 rare diseases

Access, Cures, Open Decision-Support, Open Health, Procedures (Medical), Research

Huma and RARE-X partner to accelerate research for 9,500 rare diseases

Huma, Europe’s fastest-growing health technology company, is partnering with the non-profit patient advocacy group RARE-X, which runs a collaborative patient-powered data collection platform for global data sharing and analysis to accelerate treatments for rare disease.

RARE-X’s federated data platform will pair with Huma’s decentralized clinical trials platform, complete with remote monitoring and digital biomarkers. Together, they will work closely with researchers, drug developers, and patient communities to gather data from anywhere in the world and make it easier for patients and their families to share data with researchers.

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